Encephalitis: What You Should Know
What is Encephalitis?
Encephalitis is inflammation of the brain, usually caused by an infection (viral, bacterial, or autoimmune). It can range from mild to life-threatening. Early recognition and treatment are vital.
Common Symptoms:
Severe headache
Fever
Confusion or disorientation
Seizures
Changes in personality or behaviour
Weakness, drowsiness, or difficulty with speaking
Support and Helplines
The Encephalitis Society
Website: www.encephalitis.info
Helpline: +44 (0)1653 699599
Email: support@encephalitis.info
They offer support, resources, and advice for anyone affected by encephalitis — including families, carers, and survivors.
UK 24-hour Mental Health Helplines (for emotional support):
Samaritans: 116 123 – Free, 24/7
Mind Infoline: 0300 123 3393 (Mon–Fri, 9am–6pm)
If you’re outside the UK, you can find international helplines here: findahelpline.com, which lists free and confidential mental health support in most countries.
🫶 Support Groups & Community
The Encephalitis Society’s Online Forum: A safe space to connect with others who understand.
Facebook Support Group: Encephalitis Survivors and Carers
Local meet-ups and webinars via The Encephalitis Society website.
📚 Learn More
NHS Overview: www.nhs.uk/conditions/encephalitis
Brain & Spine Foundation: www.brainandspine.org.uk
Research and awareness campaigns through The Encephalitis Society.